Gaining Traction with Citizen Science
By creating a culture that emphasizes the needs of individual patients, LymeDisease.org's MyLymeData has grown to become the largest operational research study on Lyme Disease and in the top five percent of patient registries in America.
A Nonprofit’s Role in Medical Research
In today’s environment of uncertain federal funding, medical research foundations must be flexible and creative in finding ways to allow unseen volunteers and donors not only to save and change lives, but experience the joy of it all.
The Elephant in the Pink Room
Patient leadership is at the core of METAvivor’s model, focusing on the ways that a funding entity can serve as an advocate and can involve the patient at every step of the process.
Successfully Merging Two Legacy Organizations Requires the Right Vision and Strategy
Since their merger of the National Parkinson Foundation and the Parkinson’s Disease Foundation, the newly-formed Parkinson's Foundation has seen an increased impact in their ability to carry out their mission.
Helping a Cure Become Reality
For over 22 years, The Children’s Medical Research Foundation, Inc. has been raising awareness and funding to find a cure for Sanfilippo B Syndrome.
The Key to Fighting the World’s Deadliest Cancer
You can accomplish more together than you can alone. The Lung Cancer Research Foundation and Free to Breathe have already accomplished so much. By merging, they will be able to accomplish so much more.
Giving Medical Researchers Unprecedented Freedom Yields Groundbreaking Results
Please enjoy this feature from our archives published November 2015. Sometimes the greatest scientific innovations aren’t the result of a new finding in a lab, but rather, the very way the research itself is directed – or not directed. The Howard Hughes Medical Institute’s goal is to support “people, not projects,” and it has yielded some dramatic results.
Finding a Cure through Interpersonal Relationships
Supporting nurses and other caregivers, volunteers, and aids do more than just care for patients. They create connections that are crucial to caring for the sick and their families. Josh's Fund recognizes the dedication and passion these practitioners have and gives to them so that they may further their educational and professional goals.
Smart Money in Science Philanthropy
Researchers should have the long-term security and freedom to ask big questions and take the time to find the right answers that can transform lives. Ludwig Cancer Research provides steady, long-term funding to researchers—investing in talent, and patiently giving it time to find expression.
A Legacy of Pennies and Dimes
Through small initiative fundraising and personal connections with doctors, researchers, staff, and patients, the Women's League for Medical Research at Einstein Medical Center Philadelphia has made profound and lasting changes in the cardiovascular medical community.